R3. Analysis of Datasets & Registries Related to Complex Rehabilitation Technology (CRT)
Project Leader(s): Brad E. Dicianno, MD & Mark R. Schmeler, PhD, OTR/L, ATP
Co-Leaders: Gina P. McKernan, PhD, Richard M. Schein, PhD, MPH, & Gede Pramana, PhD
Other Project Personnel: Matt Mesoros
Partners: U.S. Rehab, National Seating & Mobility, Permobil, and UPMC Health Plan
Large datasets and registries are essential elements for the consideration of accountable and value-based healthcare and associated policy. The field of CRT is relatively new to using large datasets and registries, and therefore policies surrounding CRT have not necessarily been based on research with standardized outcome measures, uniform datasets, or other similar strategies.
The study involves analysis of several large datasets that will be made available through data use agreements. The datasets contain information about people (e.g. basic demographics and health outcomes) and devices they use (e.g. wheelchairs). We will be conducting descriptive analyses of the data to better understand the characteristics of the devices being used to answer questions such as, “how long do devices last before they need to be repaired,” “how much do repairs cost?”, and “do people using certain kinds of devices have health outcomes like pressure ulcers?” The overall goal of the study is to use the information obtained to draft a new policy for insurance coverage of devices including wheelchairs.
The outcome of this project will be a large Uniform Dataset merged from multiple independent sources that includes variables of interest that can be used to inform a new value-based policy model for CRT. Specifically, knowing the average reasonable useful life (RUL) and overall cost of operating various types of CRT devices can assist in informing a payment strategy. For example, knowing mileage over time with associated service messages will be the first of its kind type analysis in the CRT industry to further inform expected RUL and maintenance routines. The comprehensive data set can also be leveraged beyond the purpose of this proposal for further investigations. Stakeholder groups and researchers may be interested to know how different variables are correlated to model predictive outcomes associated across types of devices, users, and their situation which can further promote levels of research evidence in the field of CRT.
As of December 1, 2021
Regular meetings are scheduled with our collaborating stakeholders to identify and outline datasets and variables of interest. The 5 datasets include the following:
Dataset 1: Functional Mobility Assessment and Uniform Dataset Registry (FMA/UDS) – The FMA/UDS is a person-reported outcomes registry related to satisfaction in performing Mobility Related Activities of Daily Living (MRADLs) and other factors of interest including health, function, and participation that are related to various types of Complex Rehabilitation Technology (CRT). The FMA/UDS is managed through a sponsored research agreement between the University of Pittsburgh and the Van G. Miller Group’s US Rehab subsidiary (VGM/US Rehab).
Dataset 2: Labor Tracker Wheelchair Repair Registry (WRR) – Within the existing RERC Project on Wheelchair Standards, Pitt investigators have developed a Wheelchair Repair Registry (WRR) to obtain a large dataset in order to better understand the type and frequency of failures across types of devices for research and development purposes. This project is also a collaboration between Pitt and VGM/US Rehab, who maintains Labor Tracker, which is a strategy for its members to document, track and manage wheelchair repairs that also includes procedures for insurance claims.
Dataset 3: Business Operations Data from National Seating and Mobility (NSM) – NSM is one of the largest suppliers of CRT, with over 240 branches nationwide. Due to the size and scope of the company, they maintain their own business operations data infrastructure. They maintain electronic records on all CRT cases, which includes information about the device and history of repairs.
Dataset 4: Permobil Connected Wheelchair (PCW) – Permobil is a global manufacturer of high-end powered wheelchairs. There is a feature called Permobil Connect that is able to collect and transmit information about the use and performance of the device, including battery health, frequency of battery charges, hours of use, distance traveled, utilization of power functions such as seat elevation and service messages (including device errors). Permobil is working with Pitt investigators on a subset of the data to be aggregated, de-identified, and shared.
Dataset 5: UPMC Health Plan Claims Dataset (UPMC-HP) – The University of Pittsburgh Medical Center Health Plan (UPMC-HP) is a Managed Care Organization (MCO) within, but independent of, the UPMC Health System, which is an Accountable Care Organization (ACO) serving over 3.7 million lives throughout Pennsylvania and neighboring states. The HP offers several health insurance products including commercial plans as well as Medicare and Medicaid managed care plans. The Health Plan routinely collaborates with investigators to share and analyze claims data to investigate utilization and the effectiveness of various treatments and services.
Schein, R.M., Yang, A., McKernan, G.P., Mesoros, M., Pramana, G., Schmeler, M.R., & Dicianno, B.E. (2021). Impact of the Assistive Technology Professional in the Provision of Mobility Assistive Equipment. Archives of physical medicine and rehabilitation, S0003-9993(21)00305-1. Advance online publication. https://doi.org/10.1016/j.apmr.2021.03.024
‘Benefits of Using an ATP in CRT Service Delivery’ – accepted for presentation at the 2021 International Seating Symposium (ISS)